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Conceptions of "Success": The Ethics and Rhetoric of Hand Transplantation

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서명/저자사항Conceptions of "Success": The Ethics and Rhetoric of Hand Transplantation.
개인저자Herrington, Emily Ruppel.
단체저자명University of Pittsburgh. Dietrich School Arts and Sciences.
발행사항[S.l.]: University of Pittsburgh., 2019.
발행사항Ann Arbor: ProQuest Dissertations & Theses, 2019.
형태사항156 p.
기본자료 저록Dissertations Abstracts International 81-03A.
Dissertation Abstract International
ISBN9781085723350
학위논문주기Thesis (Ph.D.)--University of Pittsburgh, 2019.
일반주기 Source: Dissertations Abstracts International, Volume: 81-03, Section: A.
Advisor: Kuchinskaya, Olga.
이용제한사항This item must not be sold to any third party vendors.
요약Twenty years since the first modern attempts at human hand transplantation (HTX) in 1998 and 1999, these operations are a fringe hybrid of the clinical specialties of reconstructive microsurgery and transplant immunology, offered only under experimental protocols in most cases. Despite having paved the way for face transplants, womb transplants, and penis transplants, fewer than 100 hand transplants have been performed so far, complicating clinical research efforts to parse results "objectively." Through ethnographic oral history fieldwork and close rhetorical analysis of the medical literature on hand transplantation, my dissertation argues that despite its ubiquity across hand transplant rhetorics, "success" is a misnomer and a distracting frame for discussions of effectiveness in the science and ethics of this field since the reality of lived experience for patients involves lifelong unfolding tradeoffs of medications management, care activities, surveillance, managed complications, and relational upkeep which are never fully resolved.By placing the question of "success" in the frame of HTX patients' self-reported experiences of dis/ability and the ongoing construction of their identity-rather than in medicalized notions of function or ability and progress-oriented histories of transplant science internationally-I show that parsing cause and effect in a many-faceted procedure like hand transplantation is a nuanced task that betrays the inherent subjectivity of data interpretation in medical science. Following in the stream of discourse on narrative medicine, person-centered healthcare, and the social construction of disability, my dissertation challenges norms for doctors representing vulnerable others to their colleagues and the public. Along with empirical insights from the oral histories, my analysis of hand transplant literature contributes to knowledge in disability studies, rhetoric of science, feminist bioethics, and science and technology studies (STS) bringing novel substance to 21st century debates about the options that should or should not be made available to those navigating the personal and putative binaries of ability/disability, beauty/deformity, and health/illness.
일반주제명Communication.
Disability studies.
Ethics.
언어영어
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