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Building Data Capacity for Patient-Centered Outcomes Research [electronic resource] Interim Report 1 - Looking Ahead at Data Needs

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서명/저자사항Building Data Capacity for Patient-Centered Outcomes Research [electronic resource] : Interim Report 1 - Looking Ahead at Data Needs.
개인저자National Academies of Sciences, Engineering, and Medicine.
Sciences, Division on Engineering and Physical,
Division, Health and Medicine,
Education, Division of Behavioral and Social Sciences and,
Board, Computer Science and Telecommunications,
Services, Board on Health Care,
Statistics, Committee on National,
2030, Committee on Building Data Capacity for Patient-Centered Outcomes Research: An Agenda for 2021 to,
발행사항Washington, D.C.: National Academies Press, 2021.
형태사항1 online resource (89 p.).
기타형태 저록Print version: National Academies of Sciences, Engineering, and Medicine Building Data Capacity for Patient-Centered Outcomes Research Washington, D.C. : National Academies Press,c2021 9780309268240
ISBN0309093244
9780309093248
일반주기 Description based upon print version of record.
요약The Office of the Assistant Secretary for Planning and Evaluation (ASPE), in partnership with other agencies and divisions of the United States Department of Health and Human Services, coordinates a portfolio of projects that build data capacity for conducting patient-centered outcomes research (PCOR). PCOR focuses on producing scientific evidence on the effectiveness of prevention and treatment options to inform the health care decisions of patients, families, and health care providers, taking into consideration the preferences, values, and questions patients face when making health care choices. ASPE asked the National Academies to appoint a consensus study committee to identify issues critical to the continued development of the data infrastructure for PCOR. The committee's work will contribute to ASPE's development of a strategic plan that will guide their work related to PCOR data capacity over the next decade. As part of its information gathering activities, the committee organized three workshops to collect input from stakeholders on the PCOR data infrastructure. This report, the first in a series of three interim reports, summarizes the discussion and committee conclusions from the first workshop, focused on looking ahead at data user needs over the next decade. The workshop included representatives of patient groups with a wide reach and researchers with broad research interests as well as an understanding of the PCOR infrastructure.
일반주제명Medical informatics.
Medical care --Data processing.
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